Chapter 2
The System
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The
long surgical incision extends laterally across the man's diminished body,
causing a very slow seepage of blood through the severed tissue. Someone
who cannot be seen amidst the assortment of computer devices announces,
"Dr. Earnshaw, pressure 90/60. Heart rate 50."
Modern medical
science has taken a turn back towards the more conventional forms of surgery due
to regulations that become more restrictive each year as the state's medical
plan for the elderly shows larger and larger deficits.
Maintaining the rapidly changing camera equipment used in laparoscopic surgery
is now something the state views as "an excessive expenditure not warranted
due to more cost effective procedures." What Howard Earnshaw sees on
the operating table before his is not someone who once had hopes and ambitions
for his life or even someone who is in the final weeks of that life. He
only recalls the medical charts of the digestive system as he probes through the
tissue surrounding the pancreas within the curve of the duodenum and behind the
stomach.
Impatiently, he
snaps, "Nurse, sponge," even though RNs departed the OR years ago on
hospital administration's supposition it does not take someone with 4 years of
nursing school and the ensuing salary demanded by the medical labor unions for
someone to wipe blood away, much the same as wiping grease from a plate before
placing it in the dishwasher. Consequently, much of the surgical staff
consists of very young women who receive 8 weeks of instruction from a retired
high school human biology teacher and now know how to align the patients under
the OR lights and in what sequence to place the surgical instruments beside the
operating table.
Howard has
performed this operation many times and now compares the process to
studying a road map before some trip over a route traveled many times. If
all the organs appear as they do on the medical chart, a number of very
regimented steps follow but if something seems out of place, some degree of
innovation is called for - much the same as following a detour to avoid street
construction.
Mucus is
accumulated around the pancreas. The OR technicians stands there looking
at one of the screens before receiving Howard's somewhat intolerant command,
"Damn it, suction! Pay attention to me and not that video game."
She utters
something in Spanish before clearing the organ of the obstruction.
Howard stares at
the massive malignant tumor that extends deep into the pancreas and has spread
to the walls of the stomach. Medical procedures scroll through his
mind. For a moment, he recalls the last time he filled his gas tank,
standing there watching the numbers race by on the meter after failing to communicate
with the Oriental attendant. It was cold that day, and he hadn't taken off
his white coat before leaving the hospital. All the while, he was thinking
how unprofessional he must appear to the drivers on the street who kept gazing
at him as they drove by. Most of the other doctors at Clairmont Hospital
no longer wear white coats but dress more casually. Hospital
administration has it that a less formal appearance places the patients more at
ease and was not amused at Howard's pointed comments that patients were more
concerned with sound medical advice than seeing someone in tennis shoes and
uncoordinated colors who looks like someone from one of those situation
comedies on television that have converted the natural attraction between a man
and woman to a series of one-liners graced by dubbed-in laughter.
He disregards
customary surgical procedure and reaches for the scalpel rather than making
another request to the OR technician. It's almost as though all his
medical books are there on the man's chest and he is studying for a test rather
than trying to save a man's life or at least, give him back a portion of life he
has lost to disease. Again, he pictures himself standing beside the gas
pump except dollar and cents are not rolling by. Instead, he is seeing the
instructions in the medical books, "make a cautions lateral probe along the
walls of the tumor and evaluate the extent to which the organ is
engaged." First, he probes across the upper walls of the
pancreas. His eyes remain fixed on the larger portion of the tumor.
Tentacles stretch from the organ into the stomach. The road map is still
in his mind as he follows the diseased tissue extending to all sections of the
middle abdomen. Alternative steps interpose established procedure, much
the same as the ringing sound on the gas pump each time a gallon is
filled. Incision into the pancreas offers no hope of removing all of the
tumor. Removing any of it along the spread course would expose too much
tissue in the vital organs, certain to cause internal bleeding soon after
closure. He slowly shakes his
head and glances at the 2 surgical residents who seem squeamish as they observe
the patient's tissue expand and contract with each heartbeat.
One of them
asks, "Do you want me to close, doctor?"
"No,"
Howard responds, still looking at the hopeless progression of the cancer.
"We just received notice from our professional liability carrier that each
surgeon must complete all phases of any procedure. It went on to say all
sorts of things are being left inside too many patients."
Several snickers
are heard somewhere in the OR. Howard hadn't intended what he said to be
taken so lightly but recalls a statement he made at the last executive council
meeting about what a joke performing major surgeries was with trainees having
only 8 weeks training. The chair, who is an accountant rather than a
doctor, kept saying something about experience being the best teacher and with
the "tight labor market," anyone who had a good job would be inclined
to hold on to it. This fact alone prevents the hospital from constantly
training and retraining personnel due to high turn-over and is a means to
achieve the progressive statistics axiom now ruling the business world.
Howard has never
used staples to close an incision and still uses stitches. The same
council meeting had described his procedure as "needlessly labor intensive
and not cost effective OR management." He didn't contest the
observation since the person who had offered the observation was a business
administration graduate and not a doctor. He carefully pieces the layers
of tissue and skin back together, and his presence of mind progressively
moves from analytical to one ruled by emotion. He recalls when he first
saw his mother's x-rays and immediately knew, even without exploratory surgery,
she was terminal.
Those years when he was
at Georgia Research Institute, the group of scientists with whom he worked felt
they were very close to discovering possibly not a final cure but at least a more
effective means to treat cancer. Just when they were at what they all
agreed was a major breakthrough, their funds were withdrawn by the federal
government due to what was described as "an outdated theory and concept
plus the non-availability of funds to support such research." What
had really happened was that, due to efforts of gay rights organizations, much
of the funds had been redirected into AIDS research. What might have been
available for cancer research was refunded to the states under the
Republican-controlled congress's promise to return tax money to the states for
distribution as determined by local government bodies.
Due to worsening
economic conditions throughout Georgia, the local officials decided to give all
taxpayers a token refund on the premise the money would be immediately spent and
assist the failing retail trade within the state. That did not
happen. Everyone just held on to the money - especially those who feared
their job was about to be outsourced to some foreign country or done locally by
someone who could not document when, or even if, he or she had legally entered the
country. Most businesses maintain it is the responsibility of the
government and not theirs to audit immigration records.
He turns the
soap over and over in his hands. After such an unsuccessful surgery, he
wishes he could wash away his mood with the patients blood - just
like an auto mechanic after repairing a transmission. Some of Howard
Earnshaw is dying - not the same as the poor man in the operating room who has
passed the point he can be helped but dying just the same. His future
treatment will be restricted to pain management with Sedateomoxifaine
administered by another echelon of 8-week graduates who have yet to master the
art of pushing the medicine carts
down hospital halls - much less the delicate assignment
of caring for someone who is close to death.
The
pharmaceutical company that developed Sedateomoxifaine pulled off a public
relations masterpiece in relinquishing it's patent rights in order that all
other companies could immediately begin producing generics. The simple
truth was that the discovering company had laid off so many employees, it lacked
the capacity to meet all the orders. After some sort of administrative
study, the company determined greater progressive statistics could be
achieved by this step as well as discontinuing further research projects as long
as the profit line of Sedateomoxifaine kept the company stock rising to higher
return on equity. The demand was such that the company's stock rose 100%
in 3 months and with that, it retained many of its pain-stricken customers as
well as enlisting a substantial following on Wall Street. Only some of
such a thought process was revealed to the general public.
Even with all his
education, Howard does not understand what is happening to his life. What
has happened to his marriage? He remembers that day at Mass when he and
Charlotte were engaged. During the sign of peace, both of them had faced
an elderly man behind them; and as Charlotte extended her hand to say,
"Peace be with you," the old man smiled and said, "You look like
you belong together."
Charlotte always loved
his mother who many times had told them the same thing. This love
continued to build all through the years of their marriage, especially after his
father met that younger woman who was more attracted to his bank account rather
than the fact she would always achieve an organism during one of their frequent
meetings, always at one of those upgrade hotels that somehow added an enhancing
degree of decorum to the encounters. Her account of the sex life with her
husband lacked tact when she evaluated it on the ultra-objective basis that,
"His gut is too big, and he can't get it all the way in." His
father must have been quite a lover. Sometimes, they would meet in a dingy
motel, he would assume a rough technique, and it made the process much
more adventurous for her and increased her drive all the more.
Marriage follows such
a different course for many people. Some grow happier with the passing
years, knowing their love is consummating a higher dimension the longer the
marriage continues. For others, the love gradually begins to fade away
until there is only regret and even hate for someone who has taken what was once
a happy life and turned it into an assorted variety of misery leaving divorce as
the only charitable alternative. This unfortunate demise is happening to
Howard. There is no other woman. The career he once had is coming
down all around him. It's so unfair that the disenchantment that now owns him is ruining Charlotte's life as well as his own. That happened to
his mother. No one was sure how she found out about the other woman but
her downfall wasn't gradual - it came in a single day.
As he drives towards
his mother's house, his eyes are trained on the street before him. He sees
nothing but images of those nameless faces on operating tables and that terrible
expression on their faces when they learn they are terminal. After so many
years as a surgeon, he has yet to perfect the way to tell someone he has only so
long to live but always avoids something like, "You're terminal," or
"There's nothing we can do." Such explanations only add to the
impersonal system that has contaminated his profession. Some of the other
doctors often speak of the time when a series of tests were conducted to
determine the cause of a patient's symptoms. Now, most such tests are
disallowed by the insurance system until the illness progresses to the point a diagnostic test is
unnecessary. By then, the patient may well be terminal but still, progressive
statistics have proven the resultant lawsuits do not exceed hospital
expenses in maintaining the staff and equipment to administer the battery of
tests that were once established procedure.
Something strikes the
back of his car, and he snaps out of his trance-like stare. Only now does
he realize he is in the Puerto Rican section of the city and the 2 men standing
on the street corner are Chytinos, a racial mix between Spanish and Oriental,
who have thrown a beer can at his car. Their one obsessive characteristic
is a consuming hate for white people as well as the Indicos, a racial mix between Indians and Spanish, a
few blocks over. The sight of a well-dressed man in
an expensive vehicle incites all sorts of emotion from what the Descendants of
the World congressional lobby calls "the oppressed people of the
Earth." There is no longer an interest in what little power remains
in Congress to address illegal immigration, because the condition is so
widespread, it is beyond legislation. They shout something in Spanish as
he passes. Recently, the local newspaper reported a number of instances
where what seemed innocent passers-by were attacked, apparently for no reason
other than they were Caucasian. Hate does that. There is a need to
strike back at something, and it's easier if the victim is nameless and more
easily forgotten.
Now aware he should
be more concerned with the perils of driving through Atlanta, he looks across the
railroad tracks at the Patron of the Hopeless Church which, after the terrorist
attack last week, is surrounded by a 7 foot fence with 2 layers of concertina
wire on top and patrolled by several armed guards in khaki uniforms with large, black dogs at their sides. He is restless and turns on the car
radio. After a few commercials for some preparation applied to the sin twice a day
to remove the signs of aging, there is the booming voice of Horace
Hastings.
"Hello out there
in America. Well, it had to happen but even I, with all my astute
political insight, was surprised when it happened so soon. The
Restoration had barely begun when someone was gunned down on the steps of
the
Church that claims its immediate goal is to reunite America under some sort
of 11th Century dogma that only a common religion can repair all those things it
claims is wrong in America. The Atlanta Police apparently did not share
this belief when they arrested the trigger man for possession of a weapon
outlawed by the Firearms Deterrence Act which disallowed private ownership of guns
to no more than .22 caliber. So what does The Restoration do? It
looks in one of its pews and finds some lawyer who gets the case thrown out on
the technicality The Restoration is not a private entity. Now, we
have armed guards patrolling a church premises which looks more like a Nazi
concentration camp than a place where someone is supposed to find himself or
discover some other nonsense that a common belief in a God that doesn't even
exist in the view of many educated above the 8th grade who can do everything
from saving your marriage to finding you a job that will place you back on the
economic ladder where you know you belong. You don't have to be an
atheist, as I am, to see what The Restoration really needs is a public
relations agent and not a bunch of priests and parishioners who are too stupid
or lazy to do anything but blame everyone else for, what do they say, 'what
America has become.'"
"You nitwits
down there in Atlanta - or anywhere else this cancer is spreading. Don't
let your lack of self-respect lead you to some unholy rebellion against your own
failure. All you're going to do is create hate of the type that prompted
that man who was gunned down trying to destroy your little Gestapo.
Hell, they should build a memorial to him right out there on the railroad tracks
- the same as the Germans should have done to those officers who tried to
assassinate Hitler. Oh, I just had a better idea. They could go
inside that museum they call a church with all those silly statues and hang the
fire bomber on the cross instead of old what's his name - Jesus."
Howard stops in front
of his mother's house and remains in his car for a few moments. He feels
ashamed in almost wishing he did not have to face her and that most of his
sadness each time he sees her is concern for his own feelings rather than the pain and heartbreak that has so
ruled her life for all this time.
The steps creak under
his feet as he slowly finds his way to her bedroom. It seems as if he is
walking as slowly as he can to delay entering her room as long as
possible. Leonard and Franklin are seated at her bedside. Some weeks
ago, she told them she enjoyed it so much more when they all visited her at the
same time. Immediately, Howard's eyes fall on the armband now on Leonard's
arm. and the maple leaf on each collar. His mother is sitting up in bed, leaning back against 2
pillows. A warm smile comes to her face as she extends her hands and in a
weak voice, says, "Oh, good. It's Howard."
There's already a
chair for him, and the caregiver departs the room. As he sits down, he
grasps her hand, brings it to the side of his cheek before gently kissing it and
placing it at her side.
"We didn't
expect you so soon," she says, still with the broad smile.
Her eyes are fixed on
Howard. How many times has she told him how proud she was of him. He
only hopes she never knows the true feelings he has about himself and never
knows the obstruction that now exists between him, Charlotte, his profession and
nearly everything else in his life. That would deprive her of just about
all she has left. "The operation didn't go as long as I thought
because...." A searing jolt in his throat stops him just before he
says something like, "The patient was terminal," or "There was
nothing I could do." That was how her Oncologist had described her
condition. The last time Howard spoke with him, he seemed almost embarrassed
that his mother had lived a full year longer than he had predicted after she
entered the "terminal" stage. Trying not to change his
expression, he adds, "Because you never can be sure how you can communicate
with an OR staff when many of them only speak broken English."
Franklin can't
conceal a disgusted sneer as he says, "Don't tell me the social justice
system has found its way from the assembly line all the way into the operating
room."
Leonard glances at
him and angrily shakes his head. As unpolished as he is, Franklin realizes
bringing up such controversial subjects will do little to console his mother and
thankfully, he shuts up.
"I'm feeling
much better," Alma says as she reaches for a medicine bottle and hands it
to Howard. "This is a good product. The pain has almost gone
away."
Howard looks at the
label which reads "Sedateomoxifaine 100 mg. Take 6 capsules
daily," and immediately realizes the dosage is nearly large enough to result in
toxicity for someone whose body weight has declined to 80 pounds. Just
before making such a clinical observation, he knows her condition must have
worsened to the point such a massive dosage is the only remaining
treatment. He places the bottle back on the nightstand and says,
"This is a new drug. Many of my patients are taking it before they
come into the hospital." Just then, he realizes he has never
prescribed it himself, because when a patient such as the one he scheduled today
leaves the OR, he goes to that God-awful hospice ward where the only treatment
for anything is pain management.
She looks at Leonard
with the same smile on her face and asks, "Did you bring me
Communion?" without the presence of mind to notice his armband or even
recall Vatican Council III declared communion was no longer looked on as the
actual body of Christ, the same as the Protestants, and is now only a
representative custom.
Leonard removes
the small circular container from his coat pocket and holds one host in front of
her eyes as he quietly says, "This is the Lamb of God that takes away the
sins of the world. Happy are those who are called to his
table." He breaks off a portion, knowing she cannot swallow it all
and gently places it on her tongue. Again looking directly into her eyes,
he says, "The body of Christ." He reaches for her hand and
begins his prayer. "Thank you, our Father, for warm memories
contained within this room and indeed within our hearts as we find our thoughts
reaching back, back across the years when we were all together in this
house. Thank you for a mother's love that has remained with each of us for
all those years and will remain with us always. For each of us, it has
been a gift that has always told us what we should do. May we always seek
out what we know is right, what we know we must do and so become those of whom
our mother can remain proud. Her love and precious memory can lead us to
what is right, and what a wonderful gift that is for anyone to receive.
Amen."
She always seems to better appreciate prayers that do not
dwell on her illness, and the warm expression written on her face is far more
comforting to him than any words she could speak.
Her private
night nurse has just come on duty and enters the room. Howard asks, "When
did she last take her medicine?"
"About 30
minutes ago," as she quietly closes the door, knowing Alma wants to be
alone with her sons.
Howard again has
that feeling resembling one of shame when he begins to think of the properties
of Sedateomoxifaine instead of the fear his mother must be feeling. He
knows the effects it has on the brain and central nervous system, and for the
next few minutes, he watches his mother aimlessly speak of persons she hasn't
seen in 40 years. Gradually, her voice declines to only mumbling but
before she drops into the sound sleep the medicine is now intended to produce, there
is obvious hate in her faint and delirious words. "That son of
bitch husband of mine.....What about the boys? I....I always had the
boys....They can never take them."
The 3 brothers
quietly step out of the room and go down the creaking stairs. Each of them
sees his mother when he was a child, standing there at the bottom of the steps
with that same warm smile they have just seen and saying, "Get ready for
supper. Daddy will be here soon."
Before they got
out of grammar school, the high level of success of their father's medical
practice caused him to undergo what political historians at one time called a
"revolution of rising expectations," not intended to refer to
successful people
but suggesting such a phenomenon is only observed in impoverished countries
first experiencing a higher standard of living, primarily resulting from past
foreign aid from the United States. Strangely, there was never a
substantive explanation as to why these same countries ultimately developed a
hatred for the same hand that fed them. The question finally solved itself
when there was no longer adequate money in the federal budget to continue
foreign aid. Some people undergo the same change when they find their
success beckons them away from what they come to view as a mundane
existence. Something like that must have happened to their father - not to
mention the fact that other woman always said she had a wet pussy for him.
The 3 of them
stop beside Howard's car. Franklin takes out his handkerchief, begins to
rub the hood and says, "Where's your chauffeur?" Through the
years, he has made something of a game in taunting his brothers about how they
always keep their hands clean in their work. He seemed to especially enjoy
ragging Leonard about those puritanical bumper stickers which read "My
child is an honor student at Christ The Redeemer School."
Howard looks at
Franklin's 15-year-old pickup truck parked at about a 45 degree angle at the
curb. The hubcaps are missing, the rear tires are caked in mud and there
is a bumper sticker reading, "If I had children, they would probably be
drop-outs."
Howard walks
over to the truck, starts rummaging through the various things in the cargo bed
and making a terrible rattling noise before saying, "My chauffeur is over
on Highland Avenue trying to pick up that painted woman you brought over here
last week."
Leonard laughs
and steps between them as he says, "Damn, sometimes you amaze me as to how
far behind the times you are. Bar room pickups are a thing of the
past. All the good whores now work off the Internet."
Franklin's mouth
drops open. "How does a man of the clothe know how to locate a
whore?"
Then, Howard
steps between them and asks Franklin, "What's about to happen at the
plant? There's been all sorts of stories on the news."
Immediately,
Franklin looses interest in ridiculing his brothers and snaps, "I think the
bastards are going to close it. It's those damn workers who can't speak
English. Hell, it takes 2 quality control people walking around behind
them all day, picking up the loose parts they can't figure out where to put
during the 20 seconds the chassis stops in front of them on the assembly
line. They've got their own labor union now. About every 2 weeks,
someone from some fucking organization called Descendents of the World comes by
and gets them all pumped up about something."
"Something?"
Howard asks. "What is it?"
"Nobody
knows." He remembers Leonard prefers to be called father rather than
reverend, because reverend sounds like some damn Protestant as he puts it.
"You see, reverend, that low-class white trash on the assembly line don't
speak Spanish and don't give me any of that silly shit about everyone in the
world is supposed to love everyone else. If you could see those cars
rolling off the line half-assembled, you might start to see what's really
happening."
Being addressed
as reverend annoys Leonard. "How many years did you threaten strikes
in your own labor union? That white trash on the assembly line fumbling
around in tool boxes with greasy hands ended up making more money that first
year residents at the hospital. It's your own fault Detroit turned to
immigrant workers. The American cars couldn't compete with the
imports. Didn't you have sense enough to see that?"
Then, Howard
steps between the two of them. With something of a laugh, he says,
"Let's resume this conversation when we have a sociology professor to take
notes."
Franklin asks,
"What about mother?" looking at Howard as though it were he who was
treating her.
"I saw her
x-rays last week," he replies just as the images flashes into his mind of
the advanced stage of cancer in that patient on whom he had attempted surgery
earlier in the day. He feels so very sad when he visualizes the same
disease is about to claim his own mother. Often, he has asked himself how
a terminal patient must feel, knowing he or she is near death and the only
assessment remaining is "we've done all we can." He embraces
both his brothers, not wanting them to see the tear forming in his eye and only
says, "It's hopeless." Suddenly, he realizes he has used a term
he always tries to avoid. "All they can do is give her
Sedateomoxifaine to keep her out of pain."
Angrily,
Franklin grabs him by the arm and stands there staring at him before throwing it
back to his side and mumbling, "Mama don't deserve this," as he gets
into his truck, abruptly drives away and leaves 24 inches of skid marks on the
street.
Howard makes a
more collected departure but is tortured by the same thoughts as his
brother. As he starts for his home, he glances at his watch and notices it's
only 2:00 pm. Sometimes, during these past few years, he has dreaded
going home only to see that wanting expression on his wife's face. He
almost wishes she would "start bitching at him" the way some of the
other doctors describe their wives and depleted marriages. Each knows the
other wants a divorce, but they have never discussed it. Perhaps neither
is willing to admit failure - not to each other but to anyone who still thinks
they have a loving marriage.
There is a
police car behind him, flashing its blue light. Howard stops at the curb
and watches a short, plump Korean officer slowly walking towards him. In
broken English, he says, "Get out of the car and open the trunk."
The officer
searches through the trunk, opens all doors of the car and looks under the seats
and in the glove compartment before seeing Howard's white coat with the black
letters "Howard Earnshaw, MD - Clairmont Hospital" embroidered above
the left pocket. Something of a smirk comes to his face, and there is
obvious resent in his voice as he says, "The only people we ever see around
here in a vehicle like this are pimps and drug pushers." He motions
for Howard to get back in the car, stands beside it and leans down into the
window. His eyes are squinted and almost closed when he says with tight
lips, "Maybe you ought to find another route. See that traffic light
up there? Two whites were mugged last week because they didn't belong
here. Stay where you belong unless you decide to become a pimp."
Howard waits for
him to say something else but he just stands there, still with that contemptuous
expression on his face. As Howard drives away, only then does he realize
he is in the Korean section of the city. There at the corner is a group of
young men who shout something in Korean as he passes by. He looks up and
down the street. No Caucasians are in sight - only Orientals. There
at the traffic light the officer had mentioned is a billboard with a picture of
a young Oriental and large, black letters reading "Wo for you in
Congress." Just then, the young men begin to shout - this time in
English. "Get out of here, nilla!" A few weeks earlier,
Franklin had told him "nilla" is the term immigrants now affix to
those of vanilla color.
________________
The
hospice ward serves a dual purpose in the view of hospital administration.
It "centralizes those requiring pain management in addition to removing the
terminal from the sight of regular patients." Recently, there was
even a lecture by some psychologist as to how recovery can be thwarted in a
"non-promising atmosphere."
Howard stops at
the nursing station but does not ask anyone to access the central data base, not as a
matter of choice but only because everyone dresses alike, and it is impossible
to determine who does what job. At times, a sufficient level of motivation
does not exist for anyone to admit to any task, and Howard has found better
reason to dictate he do as much as possible himself. He sees his last
surgery never went to the recovery room, because there was very little from
which to recover, since the surgery ceased very soon after the initial incision and probe.
Walking down the
aisle, he hears a number of suppressed moans intermingled with an occasional
painful cry. He begins to wonder if he has permitted his work to become so
mechanical, so driven by pre-determined surgical procedures that he never stops to recognize what it must be like for those in this God-awful hospice
ward who are waiting, and even wanting, to die. He sees his patient at the
corner bed, awake and wrenching in pain. Only then, does he realize he
doesn't know how he should explain there is no hope and all that can be done
is pain management. He remains intent on not using those precise words and
starts to speak, but he doesn't remember the man's name.
Relief sweeps over him when the patient turns his head towards him and weakly
says, "They told me there was nothing that could be done."
"That isn't
exactly true," Howard says, finding himself gratified someone else has done
what he should have. "We have an advanced pain medication that can
remove near all the symptoms you are experiencing."
The man's head
turns away. "Do you mean Sedateomoxifaine?" he asks.
Howard realizes
he has completely forgotten what medicine the patient is presently taking but is
reluctant to fumble through his chart. He simply asks, "How long have
you been taking Sedateomoxifaine?" on the unqualified assumption the
patient is already on the drug.
"About 5
months." He continues to grimace in pain and says, "My doctor
said that....that it was a new drug and....and....he wasn't sure if the body
would form a tolerance to it. I've had to increase my dosage to 600 mgs
per day. They said I....I couldn't have any more today, because I've
already taken that much." His expression becomes very stern, his eyes
widely open and in a stern voice, completely different from the painful whining
Howard has just heard, says, "Doctor, will you do something for me?"
"Anything I
can," Howard responds, thinking how much better that sounds than
"We've done all we can."
He looks Howard
directly in the eye and in a short, demanding voice, utters, "Kill
me." Howard does not respond. The man reaches out and firmly
grasps him by the wrist. "Did you hear what I said? Kill
me! Damn it, kill me!"
No one has ever
made such a request, and Howard doesn't know what to say. The first thing
that comes into his mind is the Catholic Church's position on euthanasia but he
recognizes now is no time to discuss religious philosophy on what is one of the
few traditional beliefs remaining in the Church. Finally, he manages what
he hopes is not and unduly analytical response and without looking him directly
in the eye, says, "You know we can't take a life. I....I mean we're
supposed to treat an illness and not wash our hands of it."
The patient's
expression becomes more stern. "Doctor, I hope you or no one you love
ever finds themselves in the shape I'm in but if you do, you're going to find
yourself asking where does meaningful life stop? Where does life cease and
become a curse not only to the sick and dying but also those who must watch a
loved one wither away - not to mention how much it costs a day to stay in this
wretched place. Killing someone like that is an act of mercy. If you
won't kill me, then god dammit, do something. I can't stand the
pain and I can't stand the worry I'm causing my wife anymore!"
"I'll
change your medication," Howard says, just as an elderly lady comes to the
bedside.
Immediately, the
man's face assumes a broad smile. He extends his hands to the woman and if
for only a moment, there is no sign of pain, no sign of resignation. His
eyes sparkle as he says, "This is my wife, Mary."
She leans over
the bed, places her hand on top of his head and gently kisses his forehead
before looking at Howard and saying, "May I see you a moment?"
She moves towards the hallway and glances back at her husband saying, "I'll
be right back, darling."
They reach the
hallway, and she abruptly turns around. Her expression changes from loving
concern to one of scorn. "You've got to do something for him. I can't
stand to see him suffer any longer. I can't even get anyone to change his
diaper, and he's laying there in feces and urine half the time."
Howard looks
above the doors on the adjacent hallway and sees the flashing white lights but
there is no one in the hallway other than the 2 of them. Tears begin to
stream down her cheek. "They don't care," she says, searching
through her pocketbook. Finally, she produces a piece of paper containing
the names of 5 different medications. "He's taken all of these but
none of them did any good until they put him on that." She points to
Sedateomoxifaine, and adds, "That worked for awhile but now, he's back in
the same pain."
Howard reaches
for the paper and sees the other drugs are intermediate pain killers and muscle
relaxers.
"Why did he wait so long for surgery?" he asks,
looking her straight in the eye for the first time.
"When we
retired, we got to keep our group insurance for awhile but then, some accountant
got the idea they could save a lot of money if they cancelled everyone eligible
for Medicare. That damn governor bankrupted the state Medicare fund,
borrowing from it to enact all that stuff he's got to do to get
re-elected. Medicaid wouldn't do a damn thing until our money ran out and
by that time, all anyone would say was 'There's nothing we can do.
He's terminal.'"
"Then why
was he in surgery this morning?" Howard asks, finding his concern leaning
towards technicalities rather the pain both of them are experiencing.
"I....I
wanted to be sure there was really no hope. We've been hoping and praying
for a miracle."
Even his
brother, Leonard, never subscribed to the idea that prayer should be an
effective substitute for sound medical advice or procedures, and Howard has
always felt such encouragement from the priesthood often did more harm that
good, sometimes leading patients into an untenable belief they could recover,
only making the final stages of their lives all the more punishing. Many
died feeling God had abandoned them as well as the medical system. He
knows the state would not pay for the ill-advised surgery, even if funds existed,
and struggles for what he should tell her. Finally, he says, "When
you receive your bill, don't worry about it. Just send it to my
office."
A thankful smile
briefly comes over her face before she asks, "How long does he have?"
Speculating on
the length of a patient's remaining life is a practice Howard discontinued years
ago. Cancer reaches a point where the patient, everyone in the family and
everyone who knows him find themselves just hoping for a merciful death.
His experience has been that if a suffering and terminally ill patient outlived
the forecast, everyone held the doctor responsible. Often, it upset the
business aspect of settling the estate, produced additional attorney fees and
worse of all, additional medical bills eventually finding everyone praying for
death rather than a miracle.
"That can
only depend on the will of the patient," Howard responds, trying to avoid
an overly clinical explanation but immediately realizing he has only created a
need for additional clarification.
Her voice seems
almost resentful when she says, "He doesn't want to live like
this." Becoming more intolerant, she adds, "I can't get anyone's
attention around here. What are you going to do?" Her eyes
remain fixed on him in an appalling stare.
Her pain is one
Howard has seen so many times and in fact, is what led him into medical research
after spending quite a few years practicing in the suburbs where most of the
patients only experienced conditions brought about by some level of success
which ultimately turned them to assorted indulgences producing the attendant and
self-inflicted conditions of hypertension and obesity. Looking back at the
dying man, statistics and medical information outlines roll through his
mind. He knows if the dosage of Sedateomoxifaine is increased, an induced
coma will result. Finally, he manages an impromptu plan. "I'm
going to add an energy-producing IV and try to keep him hydrated.
Hopefully, this will improve his strength to the point he can develop some level
of encouragement. To some extend, illness is a frame of mind. I'm
not going to tell you what I can't do. I can tell you've heard that enough
already. We need to pursue what can be done."
He cannot read
the expression on her face and isn't surprised when she abruptly walks back to
her husband's side, leans over the bed and whispers something to him.
There is only
one person in the chart room. She is frantically fumbling with the
telephone. All lines are on hold. As he removes his patient's chart,
he watches the middle-age woman for a few seconds. Each time she answers
one of the flashing lines, she takes a breath, shuts her eyes for a moment and
in the most pleasant voice, responds to a number of questions about patients in
the ward who are too weak to receive their own calls. She seems to know
all the patients' first names and refrains
from referring to them by bed numbers, a practice more commonly used to
correlate condition with location. There is obvious concern in her
voice. Howard gets the impression she has visited every patient on the
floor sometime during the day, especially when she knows the name and
relationship of each caller. He notices she is not wearing a wedding ring
but she doesn't have the appearance of a spinster. His scientific mind
automatically begins to analyze the possibilities that would place someone her
age in a starter job normally occupied by some 18 year old with dirty hair and
facial ornamentation. That line of speculation ceases when he realizes
here is someone doing more to console the dying and those who love them than he
is doing with all his years of training and experience. Many times,
kindness and concern is independent of education. She glances at him with
a pleasant smile as he enters the IV instructions on his patient's chart.
He leaves the
chartroom and begins walking towards his office. Troubling images invade
his mind. There is the professor handing him his medical diploma. He
can see himself among the procession of interns making rounds with the residents
and those terrible expressions on some of the patients' faces when the resident
would quiz the interns at the bedsides regarding their conditions and
treatments. He recalls the final years of his private practice, feeling
more like a marriage councilor than a medical doctor, listening to all those
women complain about how their husbands had become "couch potatoes,"
thus inflicting every encumbered fulfillment from clothes that do not fit to
sexual intercourse. Then, there was such an invigorating spirit when he
entered medical research. It continued to build as the Cancer Research
Component of the Georgia Research Institute drew closer and closer to what they
all were sure would be a breakthrough in cancer treatment. But then, the
grant was withdrawn in favor of more pressing needs for "available
funds" such as further research on AIDS which then was nearing the same mortality
levels as cancer and heart attack. All that remained was for him to become
a staff surgeon at this hospital.
All those
certificates on the wall of his office imply his career has been a resounding
success but he feels anything but that as he
sits there staring at them. His next surgery is 2 days away - not a result
of lack of patients but lack of funds within the system. All on
his schedule until then is morning rounds with the interns. Briefly, he
feels a flickering of his lost motivation as he re-reads a portion of his
request for an additional research grant to the Georgia Department of Health
Benefits, an entity formed under the prevailing idea that as much power as
possible should be returned to the states rather than centralized in Washington.
Summary: Study
on Reverse Metastasis
and Alteration of Deoxyribonucleic Acid Tissue Content
______________________________________________________________
Although
the accompanying documentation represents a departure from the more recent
direction of cancer research, this organization believes that the formation of
malignant cells, especially in carcinomas, can be reversed through the induction
of a series of protein enzymes created by the ingestion of
disproportionate levels of amino acids and non-protein coenzymes creating
a controlled triple helix and markedly increased levels of Collagen. When
this therapy is combined with moderate radiation after surgical removal of a
malignant tumor, it is possible the combined effect will result in anabolism in
all forms of tumors and produce a feedback inhibition of high protein molecules,
thus altering the deoxyribonucleic acid content of the diseased tissue and
disabling its ability to produce new malignant cells. Through the protein
synthesis of the altered enzymes, the body will produce healthy tissue at an
enhanced rate, eventually overpowering the diseased tissue.
With the
application of previously established facts regarding metabolism and the rate at
which the body naturally reproduces healthy tissue, the adverse effects of
chemotherapy, which often obstructs normal digestive processes and tissue
formation, are avoided. Indeed, the natural progression
of cell formation at the increased rate results in the body's becoming its own
healer instead of the radically invasive processes currently in use which, more
times than not, reduce the patient's blood count, tissue content and ability to
heal. The most distinguishing characteristic of such treatment is that it
can be administered with varying levels of intensity, sometimes following
surgery in the case advanced stages, at anytime from the completion of
tumor induction to terminal diagnosis.
He faces his
computer and sees he has one e-mail. Before he opens the program, somehow
he knows it is the reply from the Georgia Department of Health Benefits.
He clicks the marker. His face draws tight as he begins to read.
Response to Request
for Additional Research Grant - Reverse Metastasis
____________________________________________________________________________
While this institute receives many research grant requests, our staff does its utmost to review the content and merit of each proposal and then with learned guidance, weigh each request against it practicality, available funds and where the proposal stands among all undertakings of the department. Your recent transmittal, although not without some intellectual merit, is viewed as a peculiar combination of outdated processes and theory-based concepts formed without the benefit of extended test periods now recognized at all levels of health treatments and medical research. Our evaluation of your request led us to consultation with the Georgia Medicare Administrative Agency. Should that agency become financially solvent, an event that is anticipated will take several years, speculative treatments of this nature would be ruled ineligible for coverage. The failure of Medicare has driven the costs of private insurance among the few HMOs that are now accepting new members beyond the reach of most citizens of this state. Again, due to over-extended resources and mounting claims costs, no HMO with which we consulted would view such treatment as eligible. Of necessity, medical research must remain in the area of genetic engineering in cancer-free citizens and directed towards the formation of genes resistant to cancer rather than treating those who are often beyond hope. The massive costs of radiation, multiple surgeries and chemotherapy can only deplete the private insurance system beyond where it now stands - in a position of extreme weakness requiring well-managed cost-cutting procedures directed only towards pain management for fully developed cancers. After proper evaluation, the department was unanimous in belief that it would be misuse of existing resources to fund and untested treatment theory that even if proven successful to some extent, could then not be put in use due to insurance limitations at any subscribing hospital. Your request is, therefore, denied with the suggestion you take note of the facts in this transmittal and direct your future efforts into areas approved by the system.
He stares at the
computer and feels as though what little determination remains within him is
seeping from his body, much the same as dirty dish water makes a sucking
sound before disappearing down a drain. Watching ambition and purpose bleed
away is a terrible thing, often leaving one so much a different person than had
been the design of a younger man so ill-informed on the ways of the world, now
measuring success solely on progressive statistics and resultant
stockholders' equity.
As he slowly
drives home, Howard Earnshaw now feels he is a failure but what is really
impounding all those hopes, all those ambitions isn't the failure itself - it is
resent and hate that often leads so many away from what were once worthwhile
hopes to a life of rebellion that ultimately confiscates them into a meaningless
subsistence and tragically,
all those around them.
Living in the
suburbs isn't the presumed escape it was once represented by all those real
estate agents and builders who constructed the mass of cluster home communities around
Atlanta at such a hectic pace they eventually found themselves with scores of
unsold houses sitting there as a grim testimonial that social standing had
yielded to the impracticality of being trapped in grid-locked traffic for hours
during the day. In time, the buying public became intolerant to that and
those hokey names such as "Paradise Cove" and "Placid Glen" no longer appealed to whatever superceded sense a person had in moving to
the suburbs.
When he and
Charlotte moved to "The Summit," they both liked the subliminal
confirmation of success, such as the statue of some type
grotesque animal at the entrance - much the same as an upgraded billboard
announcing such success. But that was when Charlotte looked on her
success as remaining home where she could care for the children and avoid
excessive dust accumulation on the furniture between by-weekly visits by the
housekeeper - certain to be noticed by their frequent guests who no doubt would
have been delighted to see such tell-tale evidence that such infrequent visits
by a housekeeper detracted from the accruements of a prominent bank account.
Franklin is a
good bit younger than his brothers and has always delighted in ragging them
about their careers where they don't get their hands dirty. When Howard
bought the house in The Summit, he asked them if the owners' association would
permit them to have a clothesline and went on to say that if such an obvious
statement of ill-breeding were permitted, his advice was to move further away
from Atlanta. He later retracted the suggestion on the premise that the
further a suburbanite moved from Atlanta, the worse the traffic became and it
would then be necessary that Howard move his medical practice from Atlanta to
Chattanooga, unless his OR moved into his basement and his patients were then
required to come to him.
It wasn't so
very long ago that The Summit was indeed the mark of success so alluring to its
residents. Franklin came up with the formula to measure levels of
success. Howard wasn't nearly as amused as Charlotte that day when he sat down with them at the dining room table with his calculator he got
at the drug store for $3.98 and explained how each owner could evaluate himself
- or more realistically, how the other owners would evaluate him. His
theory was to divide the number of houses in the complex by the number of lawn care companies
observed in the subdivision at noon each Wednesday and then divide that into the
square footage of each house. The lowest result would indicate the highest
levels of success except in the cases of those who did their own lawn work who
were to be excluded from the study since they obviously were too low class to
even be there in the first place.
Lawn care
companies are now one of a number of things that have departed The Summit.
Once there were 50 lavishly appointed houses complete with clubhouse, swimming
pool and tennis court. Now, the clubhouse is closed, the swimming pool is
drained and only occasionally is someone seen on the tennis court that is the
only remaining amenity the association can afford to maintain since a number of
the houses have been repossessed and others stand in varying stages of
disrepair, all victims of what those who are expected to have an explanation for
economic decline describe as "the repositioning of the American populace to
more accurately represent the present economic and racial distribution."
He remains in
his car for a moment and stares at the garage door which is open, revealing a
number of storage boxes and lawn equipment in strict violation of association
requirements that garage doors remain closed at all times except when receiving
or dispatching vehicles, to avoid the unkept appearance he is now viewing.
But he really isn't concerned with boxes or association mandates, as his thoughts
reach back over the years when he was so eager to come home each night and see
his wife and children. The children now have their own lives and ever so
gradually, his marriage has faded into what it now is - one that retains little of
its former enchantment. He can see that priest who conducted the
pre-marriage counseling, then required by the Catholic Church, who kept telling them
a marriage could not be maintained on sexual attraction alone. Ironically, now
sex is all that is keeping what remains of their marriage together.
As he opens the
door, most of his troubling thoughts are centered on himself. His career,
failure to obtain the research grant and what he can do with this damn house
that has lost half its value but even at that, there is hardly anyone within a 50 mile
radius that can afford to buy it. He remembers when the children would
come running to meet him, and there always was Charlotte in one of those cute
little aprons preparing supper, much the same as any woman who had set aside
whatever career ambitions she might once held, placing her family ahead of
everything else. She still greets him but there is always that withdrawn
and evasive temperament that can no longer conceal her unhappiness. When
the children left, her life became a vacuum, desperately reaching out for
something to fill the void created by her own thoughtfulness in thinking of
others before herself. Now, she is a 55 year old woman whose thoughts can
only constantly dwell on the past.
On this night,
that damning expression, those empty eyes and the polite kiss on the cheek with
some meaningless greeting is not there. She is in the hall in front of the
full-length mirror. Her waistline remains trim, her legs still have that
sculptured athletic appearance and she has never changed her hair style from the
short, ducktail type that went out of vogue when those
women in the television situation comedies quit combing their hair and began
wearing rings in their noses and various things in other parts of their bodies.
Charlotte never let herself go physically as so many others do when they find
themselves in such an unfulfilling existence. With that, Howard has always
remained in good physical condition, telling himself it would make his
insistence that his patients take some form of regular exercise more
rational. In fact, however, it was really his own ego, not wanting to
become some flabby slob on the arm of a shapely woman at some social event
producing all sorts or under-breath observations and inviting the advances of
any stud encouraged by the unharmonious coalition.
Charlotte is
wearing a dark blue mini-skirt with a white blouse with matching blue vertical
stripes and a visor cap. She takes a few steps towards him and turns
around a few times before facing him and announcing with a vitality long
absent from her voice, "I got a job at Burger Buster."
"Doing what?" Howard asks.
"Waiting tables."
________________
Hospital rounds are among those mounting tasks that Howard dreads. The
procession of interns and first-year residents parades down the hospital hallway
like a battalion of soldiers marching in a 6-man front. The procession
turns towards the hospice ward; and as they pass the chartroom, all eyes turn
towards the very attractive technician, much the same as though they were
passing in review in some parade to recall some memorable event in military
history that no longer is mentioned in the evening news, now consumed with what
reporters call "the pressing issues of a diverse society." More
times than not, this involves a robbery, an unexplained shooting or rape.
They make a left turn, all still in step, and advance
to the bedside of the man on whom Howard performed the exploratory surgery a few
days earlier. Howard still can't recall the patient's name until he sees
it on the band around his wrist. Howard no longer directly supervises the
rounds, feeling it better training for the residents and interns to speak among
themselves and with the patients and outline the future treatment with the other
doctors. Usually, this takes very little time in a hospice ward. The
treatment is always the same - pain management.
The resident at
the head of the delegation says, "Good morning, Mrs. ...."
She responds,
"Davis," seeing the doctor doesn't know her husband's name.
They surround
the bed as the same doctor begins fumbling through some pages on a clipboard
before saying, "Oh yes, this case involves...."
Mrs. Davis
reaches out and firmly grasps his wrist. There is a demeaning glare in her
eyes as she shakes her head but says nothing.
The young doctor
seems somewhat offended at her objection that her husband be used as training
material for the advancement of their careers, some of whom can't get the image
of the attractive technician out of their minds and appear to be wearing partial
erections.
Without proper
ritual, the delegation moves on in the direction of the next patient, or
"case," on the agenda. As they walk along, Howard studies the
lead doctor's loose, wrinkled clothing, his waving ponytail, swinging from side
to side with each step, and the earring in his right ear. He tries to
remember if homosexuals wear such things in their left or right ear and finally
decides it is the left ear. Such ornamentation, worn in the proper place
implies, but does not guarantee, the person is heterosexual.
Suddenly, his
attention is drawn from the procession. He notices an unusual undertone of
painful moans throughout the hospice ward. As they pass each bed, he sees
patients in varying stages of disease with different levels of pain written all
over their faces. Some are alone and some have love ones standing at their
sides. Always, there is that same hopeless expression on their
faces. He has seen it so many times. They search their souls for
something they can do for the dying. At some point, they will all find
themselves knowing the only remaining solace rests in death.
Howard tries to turn
his attention to the rounds and glances down at his chart for the patient in bed
3307. He hardly hears the lecture-like observation made by the lead doctor
or the elementary grammar school-like questions from the interns. He sees
Sedateomoxifaine is the only medication the patient is taking and studies the
expressions on the faces of the 3 family members at the bedside as they listen
to the classroom atmosphere that has suddenly descended upon them. An
unsettling feeling comes over him as he holds his pen to the chart and slowly
reads the diagnosis.
Age: 73
Diagnosis: Kaposi's Sarcoma
Condition: Terminal
He
looks at the last blood work and notices a serious depletion of CD4 lymphocytes
in the white cells just as the medical team resumes the march. He steps to
the bedside, holds the patient's hand and looking at his love ones, softly says,
"I'm Doctor Earnshaw."
They all simply
nod and look down on the patient whose eyes are firmly focused on Howard with
the typical pleading glare of the dying. He feels it unnecessary to expand
on the patient's condition and only asks, "How is your pain?" He
drags his fingertips across the patient's frail forearm and notices the lymph
nodes are quite noticeably swollen.
The patient says
nothing but the woman, who must be his wife, showing the same pleading
expression, says, "He's been in terrible pain for a week." She
points to the Sedateomoxifaine at his bedside, begins to sob and adds,
"That helped for awhile but it doesn't do any good now."
Howard picks up
the bottle and sees the dosage is near a coma inducing level. He asks,
"How long has he been taking this?"
"About 6
months."
The patients
eyes remain fixed on him, yet he doesn't utter a word. Howard manages a
faint smile and says, "We'll need to keep him sedated with another
medication," feeling it unnecessary to mention an induced coma will at
least stop his pain.
As he walks back
to the chartroom, he realizes this patient's illness and symptoms are very
similar to those of Mr. Davis, his patient in the OR a few days earlier. Both of them are terminal, have taken
Sedateomoxifaine for the same period and now seem to have developed a tolerance
to the pain-killing properties of the drug. He enters the new medication
on the patient's chart and walks back to his office where he sits down and again
reads the denial of his request for a research grant. He stares out the
window for a few minutes, trying to remember the doctor's name who conducted the
rounds. Finally, he picks up his telephone and for the first time, uses
the new paging system that makes it unnecessary to go through the hospital
switchboard, no longer manned by a person but an automated answering device that
has so many options the caller usually forgets why he called when, or if, the
correct option is recited by the machine. He says, "Paging Doctor
Kramer. Please report to Doctor Earnshaw's office."
After some few
minutes, the young doctor walks into Howard's office, says nothing and flops
down in the chair in front of his desk. Howard stares at him and begins to
pat his desk with his pen before saying, "I've always remembered something
my professor told us in medical school. It had to do with treating the
terminally ill. He discouraged any emotional involvement with the patients
but simply suggested that in conversing with them, we imagine how we would feel,
if we were in their condition. You might find it advisable to consider
that and particularly cease referring to them as 'cases.' But that's not
why I paged you. I was concerned with 3307's chart; and by the way, his
name is James Arnold."
Some degree of
casual interest enters the young doctor's eye before he calmly says, "He's
terminal. Three weeks at the outside."
Again, Howard
taps the desk with his pen before abruptly saying, "I made a copy of his
chart." He hands it to Doctor Kramer.
Without looking
at it, Kramer says, "I know what it says. There's nothing that can be
done other than pain management. Everyone already realizes that."
Howard leans
back, throws his pen on the desk and says, "I think you need to take a
closer look at his blood work. Haven't you noticed the deficient CD4
T?"
"Chemotherapy
does that," he responds, becoming intolerant to the elementary nature of
the discussion.
"Have you
noticed the swelling of the lymph nodes?" Howard asks, leaning forward and
folding his hands on his desk.
Kramer's mouth
comes slightly open as though he were at the point of demanding some explanation
for the polite down-dressing he is receiving but he says nothing. He shakes
his head.
Sensing he has
said all he intends, Howard' voice becomes more pointed. "Here's what I
want you to do, and do it today. I want a RNA reverse transcription blood
study. Get that done and bring it to me no later than tomorrow."
Kramer slaps his
legs with his palms and says, "What are you telling me?"
There is a long
pause before Howard snaps, "I'm telling you that Kaposi's Sarcoma, depleted
CD4 T and swollen lymph nodes strongly suggest the presence of AIDS."
The young
doctor's mouth opens even wider except this time, there is a muffled laugh and
demeaning sarcasm when he says, "Come on, doctor. That old man is 73
years old and probably hasn't screwed any strange stuff in the last 50
years. Don't tell me you think he's been exchanging needles with some 20
year old whore."
"Just order
the test," Howard says. His eyes remain fixed on him until he hastily
gets up and slams the door behind him.
Howard faces the
window and begins gazing into the parking lot. Thoughts and facts begin
forming in his mind as he recalls a number of patients in the hospice unit over
the past year. As a surgeon, he wasn't the primary doctor for any of them
but a vague similarity of symptoms, medications and death certificates flash
before him, all punctuated with the same pleading stare he has witnessed this
very day. He faces his computer and stumbles through the program that
eventually leads him to archive records. After several unsuccessful
attempts to click on the correct icon, he finally selects "mortality
category designation," thinking that is where his haunting feeling is
leading him. Names, dates, ages and all sorts of data roll across the
screen. He clicks on the cancer icon and is startled at what he
sees. All neatly arranged in a number of evenly spaced columns, that
resemble the flower beds that once graced his subdivision, are the records of
each patient who died (or expired as hospital administration prefers to say) in
Clairmont Hospital for the past 5 years. Momentarily, he is lost within
the maze of information but sees another icon at the right of the screen -
"specific tabulation." He clicks on the 70-80 age group.
Another color comes up on the screen but in the same format. Slowly, he
scans what the program calls "attendant conditions" - "pneumonia,
toxoplasmosis, cryptosporidosis myco bacteria," all of which are AIDS
related complexes and provide the avenue for formation of a defective Golgi
Apparatus in the cells. He clicks on the column headed "initial
diagnosis." There are scores and scores of entries - "Hodgkin's
Lymphoma.....Hodgkins Lymphoma.....Kaposi's Sarcoma....Kaposi's
Sarcoma." Over and over in the "secondary diagnosis"
column, there is "terminal....terminal....terminal....terminal."
He stares at the
screen for some few moments before calling up the central data base screen for the
Georgia Research Institute where he has done some of his past research. He
has maintained contact with some of the doctors at the Institute who were
working with him on the cancer research and still has access to their computer
records. Hurriedly, he goes through the log-on process but at the final
step, a black screen appears with large white letters: Security
Violation. Access Denied. User Code And Password Withdrawn.
He leans
back, brings one hand under his chin and utters, "What in the
hell....?" He picks up his telephone to call the Georgia Research
Institute. There is the customary automated message directing him to press a
series of numbers, none of which seem to suit the intent of his call. As
he tries to determine what number followed by the pound key to press, there is a
very pleasant, although automated female voice, "Thank you.
Goodbye." Then, there is a click followed by the dial tone. He
slams the received down and begins to go through his correspondence records with
Dr. Harvey Russell. He finally locates the doctor's letterhead that
provides his direct telephone number and is somewhat surprised when a human
voice answers with the added compensation it is the very person he is trying to
contact. Howard remembers when the telephone system was installed at the
institute and the 2 hour period of training everyone received on how to use it
as well as how to "screen your calls and establish priorities for your
valuable time which may well not warrant returning a call."
"Doctor
Howard Earnshaw," Russell says. "Now there's an exulted name I
hadn't expected to hear today, or any other day for that matter, since you moved
to the higher echelon of the profession. What did you do - dial the wrong
number?"
Howard isn't
interested in trying to psychoanalyze his demeaning tone which could result from
the loss of many research grants or the fact he lacked the determination to move
on to something worthwhile when the institute ceased to serve any valid purpose
that anyone could assert or even imagine. Carefully, he politely says,
"I just tried to access your data base but found my access code has been
withdrawn."
"We haven't
changed any codes since the last upgrade. You should be able to enter the
system the same as you always have," Russell says in a voice of disinterest
implying he has more important things to do than discuss computer science with
someone he isn't sure he resents, envies or guardedly admires. "What
were you trying to find?"
"AIDS
archive records."
There is a long
silence before Russell says in a non-committal pitch, "Well, we have made a
few changes. Now, these damn machines are programmed to automatically void
anyone's code who tries to gain certain information without the proper
authority. That takes a whole new set of user names and passwords."
"Proper
authority? I've got blanket authority for the complete system."
"What do
you need to know?" Russell asks with his voice cloaked in what Howard feels
is a safekeeping mechanism.
"I've come
across something that makes no sense at all. Clairmont has scores and
scores of patients who have died over the past few years with complications that
strongly suggest the presence of HIV or AIDS but most of them were elderly and
not in the jeopardy categories that are even remotely related to these
conditions."
Again, there is
a long silence before Russell says, "Maybe you'd better get over
here. What about 3:00 o'clock tomorrow?"
________________
Howard slowly washes his hands after his morning surgery. He stands at the
sink and with uncertain thoughts, watches the water until it is completely
drained, trying not to become unduly apprehensive about his discussion with Dr.
Russell the day before. Momentarily, an invigorating sensation fills his
body as he looks at his patient being wheeled down the hall towards the recovery
room before he goes into the surgical waiting area.
The patient's
love ones see him the moment he enters the long hallway leading to the
room. They restively glance at one another before standing and slowly
walking to the door. The elderly lady must be his mother, and tears are in
her eyes. She starts to say something but only stares at Howard with an
expression that can only mark love and concern in its purest form.
As they gather
around him, he smiles and says, "I think we're going to be OK. The
tumor hadn't engaged any major organ, and the lymph nodes were clear. Only
a slight tissue removal was necessary, and there was no remaining sign of
cancerous tissue."
The mother
finally breaks down and asks, "You mean my boy is going to be all
right?"
Howard tactfully
makes no assurance but says, "Simply as a precaution, I'm ordering a mild
battery of chemotherapy. After that, we'll need to do a few tests every 6
months." He reads the relief on everyone's face and feels it
necessary to qualify his appraisal, quickly adding, "Cancer is a disease we
still don't fully understand. Today, there's no longer outward signs of
malignant tissue but we must recognize that for someone who has experienced his
condition, there is always a chance of re-occurrence." He reaches for
his pad
and starts to write a prescription for Sedateomoxifaine but suddenly recalls Mr.
Davis and the moaning patients in the hospice ward. He lists 2 other drugs
and says, "He'll remain on these for a few days. Only give him the
medicine if he experiences unusual pain that does not subside in a few
hours. If there is any pain level after a week, ask his primary physician
to contact me. The way this medical insurance is, we must first go through
the primary physician or the HMO will deny coverage." Hoping he
hasn't left them confused, or unduly criticized the need that HMOs maintain progressive
statistic, he shakes everyone's hand. Immediately, his concern turns
to his meeting with Dr. Russell.
When he returns
to his office, there is Dr. Kramer semi-reclined in the guest chair with his
legs stretched out revealing God-awful urine-color socks that do little to
coordinate with his dirty, white tennis shoes. He has one of those green
and white computer pages in his hand and waits until Howard sits down and faces
him before he says, "I've got the lab report for the HIV study on James
Arnold." He pauses, slightly shakes his head and says, "It isn't
especially conclusive but does suggest a depletion of T4. For someone in
his condition, we'd need to do several comparative studies to confirm the
copy of RNA."
He hands the
page to Howard who for a moment, waits for him to say something else but he just
sits there in his wrinkled clothes with the small rhinestone in his left ear
gleaming in the overhead lights.
Howard scans the
lab report, places it on his desk and looks at Kramer whose contempt for staff
surgeons overrides any need that he offer a more detailed prognosis.
"Have you ever seen anything like that?" Howard asks.
Kramer shakes
his head and says nothing.
Howard realizes
he feels an unusual amount of dislike
for the arrogant doctor and only
says, "Thank you." He watches him quickly get up but before he reaches for the door, Howard asks, "By the way,
doctor, did someone piss on your socks or did you find them in the toilet
somewhere?"
Kramer slams the
door behind him without uttering another work, either on medical science or
fashion design.
________________
Howard remembers Boulevard as it was only a few years ago but as he drives down
the central city street, there is such a change. Many of the older
buildings have been torn down, and a series of cluster condominiums have been
constructed side-by-side that at first sight, give the impression one has
entered a military post with everything dressed right and covered down instead
of driving through what is supposed to be an upgrade neighborhood for those who
have somehow managed to maintain their bank accounts within an economy that has
been in decline for months and months. Now, what exists is blocks and
blocks of buildings with many vacancies never filled by the suburbanites who
were supposed to move back closer to the city after what many financial advisers
suggested was "an ideal time to capitalize on the emerging trend towards
urban residence." There is such a trend but the developers, advisers,
real estate agents and even some of the present so-called economists did not visualize the
massive layoffs within the past several years or speculate on how much of the
retail market would move towards the Internet - not as a matter of consumer
choice but of necessity, because those who were previously retail sales clerks
found themselves at the top of the list of those who were laid off in order to
reduce operating expense, increase stock holder equity and achieve greater progressive
statistics. This is not to mention the enormous balance of trade
shortcoming resulting from outsourcing much of the manufacturing trades to
foreign countries and the importing of foreign-made commodities.
Howard parks in
the same spot that was reserved for him when he was employed at the Georgia
Research Institute and is not surprised at the number of vacant spaces, considering the layoffs after much of the research funds previously
supplied by the federal government were returned to the states. Due to declining
state income tax collections, these funds eventually found their way into
projects to prevent crime such as the purchase of television adds trying to sell
the idea of peaceful co-existence in a multi-racial society.
Dr. Russell is
seated at his computer, glances up at Howard as he enters the room and with no
change in facial expression, goes back to the computer for a full minute before
finally facing forward and curtly asking, "How much do you know....or how
much do you think you know?"
Russell is a few
years older than Howard and has been at the institute since it was formed.
Strangely, his expression displays the same contempt for him as the last doctor
he viewed exiting his office with a 10 inch ponytail and urine-color socks.
Russell is much too conservative to be taken in by those broom-straw male models
that have found their way into the medical journals to advertise the current
trend which blends urine-color socks, earrings and gaunt physiques, often
leaving the reader confused as to if the target market is a doctor, a homosexual
or a drug addict. His white coat is starched and goes well with his light
blue shirt and black tie with coordinating oblique stripes the exact color as
his shirt.
When Howard was
at the institute, the 2 of them were at odds on nearly everything except their
taste in clothing. Trying to avoid the controversy that erupted almost
daily when they were working together, Howard politely asks, "Very
little....Only enough to think there may be something very serious developing in
HIV transmittal."
Russell places
one hand on the back of his neck, looks to the side and exhales. He seems
laboring over what, if anything, he should say. "How many AIDS
patients have you treated?" he finally asks.
"Very few,
especially since all those drugs were developed a few years back that arrested
the symptoms in most cases," he replies, noticing a sarcastic smile on
Russell's face.
Again, Russell
hesitates but as his smile becomes broader, he asks, "Do you still use penicillin to
treat an infection?"
"Not
anymore."
"Why?"
Howard sees
Russell is enjoying playing with him as though he were a fish on the line of one
of those persons who considers himself a sportsman by going out somewhere in the
woods, hiding behind a bush and shooting the first helpless animal he
sees. "Because it's been used so long, much bacteria has developed an
immunity to it. Hell, every 4th grader that wants to be a doctor knows
that."
With a slight
laugh, Russell faces his computer, pushes a few buttons and says, "Let me
show you something. I can see you're going to find out anyway."
Howard walks to
the computer and watches the program options roll across the monitor until
"deceased" appears. Russell clicks on the icon, which is in the
image of a tombstone, and asks, "Tell me if you see anything similar in all
these cases." He allows Howard time to view the screen before
scrolling forward to several other pages.
Howard searches
up and down the screen. Over and over there is Non-Hodgkin's Disease, Hodgkin's
Lymphoma and Kaposi's Sarcoma, all diseases that are often associated with AIDS and
remain undiagnosed for long periods, because the types of AIDS that result in
these diseases often produce very little symptoms. Most of the
"deceased" were over 70 years old. "Go back to the 1st
screen," he asks. He nods for Russell to proceed on the the next and
the next. He goes back to his chair, sits down and says, "At the risk
of appearing overly simplistic, most of them had the same zip code."
Russell leans
back, laughs aloud and in a rather loud voice, almost shouts,
"Exactly!" He leans forward, places his hands on his desk and in
an even less dignified manner, says, "Do you know how long it took that
bunch of wet-backs in the records department to recognize that?"
Momentarily,
Howard is more captivated by his former colleague's harsh attitude than with the medical records of the deceased. He simply shakes his head.
Suddenly,
Russell's mannerism changes from outspoken resent to cautious reservation.
His face comes completely blank as he tilts his head to the right and almost
whispers, "You realize what you have just seen requires a top secret
security clearance." Abruptly, he stops and says,
"Damn. You no longer have the clearance."
Again, Howard is
bewildered. Guardedly, he asks, "Are you frustrated with lost
of grant funds or do you want to leave the medical profession and become a
postman to look into those zip codes?"
Russell stares
at him for a moment but does not respond with the derision that seems to have
become the dominant form of his personality. Instead, he adopts something
of a cautious temperament and quietly says, "Can I have your word you will
keep what I'm going to tell you to yourself?" His eyes are stern and
glaring. He waits until Howard nods before leaning back in his chair and
saying, "Since you moved to the suburbs, you might have forgotten or chosen
to ignore what's happened to Atlanta. You must still have the analytical
mind I recall, because you noticed most of the patients had the same zip
code. He is restless and again leans forward, again adopting what has
become his natural cynicism. "What should the analytical mind tell a
researcher about such a phenomenon?" Still again, he leans back and
is outwardly amused at the quizzical expression on Howard's face.
Howard begins to
resent being questioned like some 3rd grader and impatiently responds, "The
first step in any such research is to determine what factors link the subjects.
We don't seem to be speaking of pollution-related causes. I can't see how
the zip code...."
Exhaling,
Russell again leans back and stares at the ceiling. "How long has it
been since you've been over there on North Midland Avenue?"
"Charlotte and I used to like to go over there to those
antique shops. We haven't been there in quite awhile."
"Did you
notice anything strange?" he responds, again facing Howard and placing his hands back on
his desk.
Becoming more
impatient, Howard shakes his head but then says, "There's a lot of gays
over there. Most of the people in the shops had high-pitched voices and
all sorts of ornamentations on their bodies."
"What
else?" The ridiculing smile begins to trickle over his face as he
watches Howard struggle with the bizarre direction of the conversation.
Finally, he says, "Doctor, I'm supposed to be a research scientist and not
a member of the census bureau but let's see, what do those monkeys down there at
City Hall say?....Oh yes, 'the dynamics of the neighborhood have brought
together an expanding homosexual community among a population of older
residents.' What they really mean by that bull shit is some of the older
people have lived there all their lives and are still trying to hold on to a
neighborhood they once loved because they can't afford to move away from
it." He gets up, walks to a filing cabinet and goes through some sort
of password process to open the top drawer. He removes a folder and
walking back to his desk, drops it in Howard's lap. He sits down and
resumes the same stare without saying a word.
The "AIDS
MUTATION" label strikes Howard. He looks at Russell who still says
nothing. Howard recalls Russell as a very detail-oriented researcher, so
much so, he often lost himself in lengthy dissertation of medical facts not
related to the project at hand. He looks at the 2 1/2 inch content of the
folder, goes to the index and sees the summary is on page 150 where he
begins to read.
Urgent Transmittal To
Georgia Department Of Public Health
Subject: Destruction of P53 Gene and Parallel Metastases
______________________________________________________________________
The
conclusion of this study is that through a mutation process not fully
identified, the AIDS virus is now spreading by other than blood to blood
contact. In a creditable number of case studies, the condition is limited
to persons over 70 years old who have naturally undergone some depletion in the
immune system. The mutation has, however, shown a very rapid evolution and
should be expected to eventually expose all age groups.
Specifically,
the virus is attacking cell receptors producing a distorted growth factor in
proto-ontogenesis which are very rapidly mutating into oncogenes. Once the cell is
attacked, p53 gene production is repressed, apoptosis is inhibited increases and
expands the production of telomerase at a rapid rate, thus producing a
well-developed angiogenesis and ultimate
metastases. Initial indicators were that this process was largely confined
to vascular tissue but more recent studies show such progression is now
occurring in all organs of the body, primarily the pancreas and liver.
Through the
course of this study, one glaring fact was noted which has never appeared at any
level of all previous medical research. The incident rate in the state of
Georgia was 90% in the city of Atlanta and further defined to 85% in a small
geographic area consisting of less than one square mile. The area is
largely populated by homosexuals where a greater incidence rate of AIDS and
related illnesses could reasonably be predicted; however, of the 85% in this
small area, 75% of the infected individuals were over 75 years old and none
were homosexuals or members of any high-risk category in contacting these
diseases.
It is the
undisputed and unanimous opinion of the research center that a grave public
health issue exists that commands immediate public notification and bold
measures to prevent the spread of these diseases until the contributory causal
effect can be more specifically identified. At present, it is believed the
virus has mutated to a strand that can be transmitted by the most casual contact
with perspiration, skin oil and saliva.
________________
Howard slowly shakes his head, closes the folder and places it on Russell's desk
before exhaling and faintly saying, "Damn."
"A very
astute observation, doctor." Russell picks up the folder and
immediately places it back in the filing cabinet and then goes through several
steps to encode the security lock. As he walks back to his desk, he says,
"Now, I'm going to tell you something else you probably won't
believe. Do you know what those idiots at the state told us to do?"
"Since a
certain amount of theory exists as to the transmittal mode, they probably told
you to keep this under your hat. Releasing only what you know now probably
wouldn't accomplish much."
That same
defiant smile comes over Russell's face before he breaks out in a stifled
laugh. "That's exactly what they told us, among other things."
"What other
things?"
"They said
our data base was far to small to draw any such far-reaching
conclusions." Before Howard can respond, he holds up his hand and
pointedly says, "No, we haven't asked any of the other states if they have
noted similar trends."
"Why?"
Russell leans
back, places his hands behind his neck and again starts staring at the
ceiling. "Doctor, you've been away from here a long time and probably
don't know how fucked up things are over there at the Capital. What do you
think happened when Congress turned medical research over to the
states?" Immediately, he leans forward. "I'll tell you
what happened! Research is galloping in 50 different directions with no
co-ordination, severely reduced funds and almost no exchange of
information." His emotion rapidly alternates between defiance and
sarcastic amusement as he adds, "Do you know what the number 1 priority is
in the state legislature?" Before Howard can venture a guess, he
blates out, "They've got to teach these squint-eyes and wet-backs, most of
whom are here illegally, how to speak English. And I'll tell you something
else. They told us all these privacy and human rights laws those imbeciles
have passed in the last few years would deny us access to the medical records we
need to get the conclusive proof they want."
Howard's mouth
drops slightly open. "What?"
Russell doesn't
repeat himself and only adds, "The Descendents of the World organization
has got all those frigging politicians so brainwashed on all this diversity
horse shit, that's all they ever talk about. Everyone's trying to clothe
himself as a human rights crusader. All they're trying to do is stay in
office. In some districts, immigrants are now the majority of the
voters."
Finally, Howard
manages a slight smile and says, "I really don't see how...."
"Of
course, you can't see how," Russell responds, appearing he is about to leap
across the desk. "Maybe you ought to take a few days off and sit
around here for awhile. It's comical. You could probably sell
tickets to it."
The records on
the hospital computer system reenter Howard's mind. "What are you
going to do?"
"Not a goddamn thing!" he snaps. "We're just going to have
to teach everyone to speak English first and then look at the lesser
priorities." Somehow, he immediately becomes more restrained and
calmly utters, "I suppose the state might be right to some extent. If we
went public with what we know, we'd look like some of those damn politicians
bitching about all the things that are wrong in America and getting everyone so
stirred up, they'd expect we come up with a solution overnight." He
pauses, leans back and places his hands on top of his head before sarcastically
laughing and saying, "Even if we had this goddamn sufficient data base,
we'd have the Gay Rights Alliance
on our doorstep and on the evening news making all sorts of ridiculous charges
of discrimination. Hell, there're more concerned with the right of a bunch
of dirty little queers to stick their pricks in each other's asses than they are
such a trivial matter as public health." His emotional outburst
ceases, as he keeps leaning forward and backwards in his chair. In a very
serious tone, he says, "Of course, you realize how important it is that you
keep this to yourself, at least for now. I guess I'll have to keep you
informed, even though you no longer have the clearance. In the meantime,
if you run across any woman with $5,000,000 dollars who has low standards and is
looking for a husband, let me know. My wife, I'm sorry to say, left
me. She couldn't put up with what all this is doing to me."
Abruptly, he turns around, picks up his telephone and gets an outside
line. He seems to be listening to a recorded message, slams down the
receiver and remains motionless, staring out the window.
________________
It
is troubled thoughts that rule Howard's mind as he aimlessly drives back to the
hospital. It isn't only what he has just heard. There are the faces
of those in the hospice ward, the tears in the eyes of their love ones - all
denied anything but pain management due to the financial limitations of the
health care system. There is the denial of his research grant because the
same financially depressed system cannot fund "highly speculative
research" and adhere to the prevailing attitude nearly everywhere that progressive
statistics must determine what is done and what is not. He sees
Charlotte as a young woman and those happy expressions on her face when the
children were in the house; but as his career moved towards what he had always
thought would be success and fulfillment, her life began to wither, much the
same as a leaf in the final days of autumn, waiting to fall to the ground where
its past beauty is forever lost to a new season, changing times and those such
as himself who have placed their own hopes and ambitions ahead of loving concern
for another person's feelings. He wonders what he can do, what must he do
to give her back the happiness he has destroyed.
Slowly, he walks
through the hospice ward. Several patients, their bodies diminished by
disease, pain and worry fix their eyes on him as he passes. There is an
unspoken pleading indelibly written across their faces as if each is begging,
begging.... please, please do something for me. He is at Mr. Davis's bed and
comes to a dead stop. His wife is standing there at his side with the most
composed expression on her face. Her eyes convey a gentle and loving
sentiment, and there is a tender smile as she looks down on her husband.
Lovingly, she holds his hand. Howard looks at him and immediately, knows
he is dead. She glances up at Howard before placing her husband's hand on
the bed, still standing there and gazing down at him.
Cautiously,
Howard walks forward and suddenly is seized with the most startling
apprehension. Quietly, he asks, "How did you do it?"
Her eyes remain
fixed on her husband for a moment before she says, "That medicine you
prescribed to replace Sedateomoxifaine - I saved it up for a few days and gave
it to him all at once. That's what he wanted. No one here would do
anything for him. Somebody had to do something. He's at peace
now."